About us

We’ve been consumed by the world of childhood cancer, learned things we never wanted to know and felt the devastation of diagnosis, relapse and death. We want to do what we can to change things. Change the prognosis. Change the treatment. Change the outcomes. Share our experience, raise awareness and support others.

We want to see a future where children don’t have their lives forever changed or lost to a horrific cancer.

Who we work with

To try and achieve these aims, we work with:

• Children’s Cancer and Leukaemia Group (CCLG)
• Alice’s Arc
• Managed Service Network (MSN) for Children and Young People with Cancer
• and families touched by rhabdomyosarcoma across the UK and beyond
  
  

Super Ruby’s Rhabdo Raiser

In 2019, following Ruby’s relapse, we set up a “Special Named Fund” with CCLG – Super Ruby’s Rhabdo Raiser. We started raising money as a family. Following her death we continue, with the support of family and friends, in her name, for as long as it takes.

This is Ruby’s legacy. She didn’t want any child to go through what she endured. She wanted to help others. She also wanted to have fun! So we try to raise money in the spirit of Ruby and do things she would have enjoyed.